Jack and his dad.. Who is the patient?
The Good
Jack's results. His platelets back to normal, cbc normal, and enzymes normal. The life threatening infection that was racing through his blood, suppressing his white count causing him to be septic was gone.
The enzymes being normal, his pancreas is settling down. He still has his tube in his nose and we are still waiting and resting his pancreas. Either we are seeing the light at the end of the tunnel or its the lights on the train coming in the other direction, never sure.
The bad.
I called Jack's home health care supplier today, I am out of the formula I put in the bag attached to the tube that goes down his nose and feeds my son. It seems that our insurance will cover the tubing and empty bags but not the food that goes in it. Excuse me? WTF. Car insurance is so much more effective than medical. We pay our medical insurance religiously. When it comes time to pay, no they seem to have a hard time letting go. You know to pay for life saving surgery, medicine, tests, all the things that will give my child a fighting chance against this disease. Honestly, jail.
The Ugly
Insurance executive who refuse to pay out for surgery, supplies, tests etc. Either jail or a two week stay at Columbia Pres. I read an article today that if you are treated at a hospital that is more aggressive in their care you have a far better chance of surviving. The only reason hospitals are not aggressive, they do not want to risk not being paid by the insurance company. That is heartbreaking..
I left Morgan Stanley's Babies Hospital today, Jack in tow, and took a picture.. the doors.
Jack waiting to go home...
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