Naive

Before having a sick child, I naively believed if there was a disease, there were teams of doctors working tirelessly to cure it.  I did not think about funding, but why would the government not pay for cures.  I could not have been more wrong.  The truth is its you and me and my friends and friends of friends that are left with the responsibility of finding a cure.

If your child is fortunate enough to have a disease which many others have, chances are there is a lot of funding for it and a lot of progress being made.  While CF does not effect a large amount of children, the organization and there is one, is very well run.   The overhead, 95% of the money they raise goes towards the disease, I have seen their offices and would have put it at 98%.. this is an good thing.

Others are not so fortunate as we are.  Their children have diseases that are rare.  Rare means, not many people raising money. No money no cure.  What makes it even more unfair is that the government makes the process for finding a cure very very expensive.  A great deal of money at the CF foundation is put toward getting medicine approved, through a very difficult and expensive government buearacracy.

First thank, thank you to all of you who donate.  If you have friend with a child with illness, make donation to that particular disease.  Attend fundraisers for childrens diseases and hospitals, they raise money you have fun and bid on trip or a spa day and go, everyone is happy.

I do not even want to talk about insurance companies, except to say our children get healthy or stay healty in spite of insurance companies.  Shouldn't it be the other way around?

So thank to all of my friends and friends of friends, who have walked in the rain, danced in a club, listened to endless speeches,  met the mets in order that we can find a cure for CF... your efforts working they are getting closer to a cure and have given children with CF a chance at a longer more productive life..

Thank you one and all....