After staying up until midnight waiting for them to bring Jack for his MRI, we finally fell asleep only to woken up at 7 am Sunday morning. We were on our way to Milstein finally for Jack's MRI. Jack has a hard time with IVs. Getting the one currently in place, took many attempts and from the start it burned. The MRI required Jack to lay still in the machine for half an hour, while contrast was injected through his IV. The contrast caused an intense burning sensation, I watched as tears ran down his face, but he held still and got through it. The MRI guy loved Jack and said he was better than most his adults.
Once back in the room it was obvious his IV was blown. His hand was swelled to twice its size and he needed another IV. Charlene from the IV team came and Jack held out his other arm for yet another IV. Later in the day a resdent came to insert a NG tube through Jack's nose that would go into his bowl. I asked repeatedly how often she had done it. She did not want to answer. She got the tube in but was unable to take the "guide out" making it extremely painful for jack. Tears streaming down his face, and begging them to take it out .. finally they did. The resident finally copped to never having done it before.
So now we are waiting for someone with experience to try. Nothing ever comes easy for Jack. But he held his own and watched "man against the wild" on his iPad. We laughed about how his sister sam would fair "out in the wild". We both agreed she was too much of a diva to do it. However, Kate my youngest, said "if a film crew was following her she might give it a try". We all laughed...
Today jack is on day five of IV antibiotics to clear up this life threatening infection. He needs seven in total. And we are waiting for the results of the MRI and another attempt at the NG Tube.
Some say Jack is lucky to have me. Its the other way around, Jack has shown me courage and a passion for life that I have never seen in anyone before. xxx Jack.
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